October 25-31 is EB awareness week.
Epidermolysis Bullosa or “EB” is a group of inherited blistering disorders characterized by exceptionally fragile skin and excruciating chronic wounds. Some forms of EB occur because the skin is not as good at making certain keratin proteins. Others occur because the skin is not as good at making certain collagen proteins. Keratin and collagen are important parts of the skin that help keep the structure together.
People with EB have come to be known in some countries as “butterfly children” because their skin is extraordinarily delicate, like a butterfly’s wings. There is currently NO cure for EB and doctors familiar with the condition have described it as “the most painful disease known to man.” The objectives of International EB Awareness Week are:
- To increase global awareness and provide advocacy for compassionate public policies in every country; and
- To promote research toward finding a cure, and the development of effective new treatments
keragelT is a keratin based wound care product that is making a big difference to families living with EB. Click here to read their stories. keragelT is based on Replicine Functional Keratin, the same innovation found in the new Retrospect skin system creating a buzz in the US beauty media.
In partnership with the charitable organization DEBRA, Retrospect is providing a free set of Retrospect samples for every donation made during EB awareness week. To learn more and make a donation click here